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'Holding Hadley & Hollyn' | Orange family keeps their faith alive as daughters battle rare disease

10-year-old Hadley, was diagnosed with the extremely rare disease at age three and their second daughter, six-year-old Hollyn, was born with the same condition.

ORANGE, Texas — An Orange family is keeping their faith alive while the community rallies behind them. 

Josh and Devon Fults are the parents of three kids, two of those kids have been diagnosed with autoimmune encephalitis.

Autoimmune encephalitis is a collection of related conditions in which the body's immune system attacks the brain, causing inflammation

The oldest daughter, 10-year-old Hadley, was diagnosed with the extremely rare disease at age three and their second daughter, six-year-old Hollyn, was born with the same condition.

MORE | "Nothing is impossible with God" shirts in support of Hadley and Hollyn

MORE | "We will trust, He will provide" shirts in support of Hadley and Hollyn 

MORE | "There's value in the struggle" bracelets in support of Hadley and Hollyn

"We're probably living in a lot of people's worst nightmare, I think with two sick kids, but God has been so faithful and so near," Devon Fults said. 

The Fults family has traveled from hospital to hospital for seven years.

"If we cant cure it, we want to be able to provide treatment that will let her you know, live a normal life," Josh Fults said. 

Josh and Devon Fults desire a life of normalcy for their daughters, like playing with dogs and coloring.

But instead, the girls have to watch each other struggle. 

"I'm sad to see her go through the same things," Hadley Fults said. 

Their life consists of MRI scans, CT scans and sleep studies. The Fults family has traveled from Minnesota to Pennsylvania, searching for answers. 

"We're really trying to find teams that are willing to turn over just about every leaf to kind of find some new information to try and help us," Josh Fults said. 

To assist with travel costs, friends, Robin Clark and Karen Bozman started a campaign.

Clark came up with the idea of selling bracelets for $5. 

"It's a necessary thing for us to under guard them and lift them up in their time of need," Bozman said. 

The words on the bracelet read "there's value in the struggle".

"It reminds me even when times are tough, God sticks with me," Hadley Fults said. 

Devon Fults says this road is long and can get lonely, but seeing someone wearing one of those bracelets is humbling and encouraging.

"It's just a tangible way to remind the girls that hey this hard but we're not by ourselves, the Lord is with us," Devon Fults said 

The Fults Family recently traveled to Boston, Massachusetts to visit the Boston Children's Diagnostic Clinic. 

After bracelet sales and donations, their flights were covered. 

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