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'I feel hope:' Nebraska Long Covid patient finds relief in therapy

According to UNMC, more than 1-in-10 patients diagnosed with an early version of Covid experienced Long Covid symptoms, but that number is improving.

'I feel hope:' Nebraska Long Covid patient finds relief in therapy

According to UNMC, more than 1-in-10 patients diagnosed with an early version of Covid experienced Long Covid symptoms, but that number is improving.

CHANGING, ACCORDING TO THE CDC. THERE ARE CURRENTLY ABOUT 7000 PEOPLE IN THE HOSPITAL WITH THE VIRUS. IT’S ANOTHER NUMBER THAT’S NEVER BEEN LOWER. BUT EVEN AS THE THREAT WEAKENS, MANY STILL STRUGGLE WITH THE LINGERING EFFECTS. THAT’S ALSO CHANGING. NEWSWATCH SEVEN’S BILL SHAWMUT FILED THIS SPECIAL REPORT. LONG COVID. IT’S AS REAL AS YOU AND ME. THAT’S THE MESSAGE FROM DOCTORS AND THERAPISTS WHO SEE IT EVERY DAY. BUT IT’S HARD TO TREAT, HARD TO DIAGNOSE. AND FOR THE PEOPLE WHO HAVE IT A HARD BATTLE TO WIN, BUT A BATTLE THAT COMES WITH HOPE, STABILITY AND BALANCE. IT’S SOMETHING THAT’S BEEN MISSING FROM SHERRI MAGNET’S LIFE FOR A LONG TIME. I WAS TERRIFIED. IT WAS AT THE PEAK. PEOPLE WERE GOING INTO THE HOSPITAL AND NOT COMING OUT OF THE HOSPITAL. HER OCTOBER 2020 COVID FIGHT KEPT HER OUT OF WORK FOR TEN WEEKS, BUT THAT WAS JUST THE BEGINNING. THIS BOUNDLESS CUP OF ENERGY HAD BEFORE GOT. COVID ISN’T THERE ANYMORE MONTHS OF SPECIALIST EVENTUALLY LED TO A LONG COVID DIAGNOSIS. NOBODY GETS LONG COVID YET THEY DON’T UNDERSTAND WHAT IT MEANS. AND SO THEY JUST LOOK AT YOU LIKE YOU’RE KIND OF ODD OR YOU’RE WEIRD OR YOU’RE JUST MAKING IT UP. WELL, I’M NOT MAKING UP MY BODY TEMPERATURE. DROPPING NINE DEGREES AND GOING INTO ACUTE HYPOTHERMIA FROM CHRONIC FATIGUE TO HEART PROBLEMS TO GASTROINTESTINAL ISSUES, IT’S AFFECTED EVERY PART OF MY LIFE. AND WHAT THEY’VE DONE HERE IN A LITTLE OVER A MONTH HAS BEEN FABULOUS. HERE IS MADONNA REHABILITATION HOSPITAL’S POST COVID CLINIC. I PROBABLY DO ABOUT FIVE EVALUATIONS A WEEK JUST IN MY DISCIPLINE. THAT’S NEW PEOPLE. NEW PEOPLE. YES. ERIN CONLEY IS SHERRY’S OCCUPATIONAL THERAPIST. THEY TELL US WEEK AFTER WEEK WE ARE THE ONLY ONES WHO UNDERSTAND WHAT THEY’RE GOING THROUGH. THAT IT IS REAL. THE DIAGNOSIS IS REAL, AND SO IS THE HELP. I’VE SEEN PEOPLE GO BACK TO WORK. I’VE SEEN PEOPLE GET BACK TO DRIVING. PLAYING WITH THEIR KIDS. AND I DO KNOW IT’S POSSIBLE. IT’S ALSO STILL VERY NEW. WE’VE ONLY HAD THREE YEARS OF EXPERIENCE WITH IT, SO, YOU KNOW, WHAT WILL THIS LOOK LIKE IN FIVE YEARS OR TEN YEARS? NOBODY REALLY KNOWS. DR. MARK RUPP IS A LEADING INFECTIOUS DISEASE EXPERT AT UNMC. DESPITE LONG COVID’S UNCERTAIN FUTURE, THERE’S PROMISE. EARLIER, WHEN WE WERE FIRST SEEING COVID 19, YOU KNOW, OFTENTIMES IT WAS TEN, 15, 20% OF PATIENTS. NOW IT’S TYPICALLY IN THE LESS THAN 5% RANGE. BUT THAT’S STILL 1 IN 20 PEOPLE LOOKING FOR HELP LONG AFTER COVID 19 LEAVES THEIR SYSTEM. IF YOU TAKE THE TECHNIQUES THAT WE RECOMMEND AND YOU IMPLEMENT THEM INTO YOUR LIFE, I WOULD SAY THOSE PATIENTS ARE GETTING BETTER AT A LITTLE BIT FASTER RATE. YOU’RE GETTING SIDE TO SIDE TO. RIGHT. AND LEFT. PATIENTS LIKE SHERRI RE GAINING BALANCE ON HER FEET AND IN LIFE I FEEL HOPE LIKE I’LL BE HONEST IT’S THE FIRST TIME I HAVE FELT HOPE SINCE I’VE HAD COVID MADONNA OPERATES A POST COVID CLINIC IN BOTH LINCOLN AND OMAHA. THE HOSPITAL TELLS ME IT’S SEEING PATIENTS FROM MIDDLE SCHOOL AGE TO THEIR 90S IF YOU THINK YOU NEED HELP, WE’LL POST A LINK TO THEI
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'I feel hope:' Nebraska Long Covid patient finds relief in therapy

According to UNMC, more than 1-in-10 patients diagnosed with an early version of Covid experienced Long Covid symptoms, but that number is improving.

The Covid Pandemic is changing.Right now, there are roughly 7,000 people hospitalized with the virus in the United States – a number that’s never been lower since the pandemic ramped up in the Spring of 2020.Despite the numbers, for many, finding stability and balance in life post-Covid is difficult.“This boundless cup of energy I had before Covid isn’t there anymore,” said Sherri Magnett, a project manager from Omaha.She still hasn’t fully recovered from a Covid diagnosis in October 2020.“I was terrified,” she said. “It was at the peak. People were going into the hospital and not coming out.”Magnett refused to go to the hospital and was aided by a recently retired nurse friend. She missed 10 weeks of work, but 20 months later, full recovery is something she’s still searching for.“It was unbelievable in how it impacted my job,” she said. Magnett said the virus destroyed the memory constructs she’d built up her entire life.She’d get home from a couple of hours of work with a pounding headache and little memory of what happened that day.“I close my eyes and I see nothing,” she said.After months of fatigue, brain fog, and battles with heart and gastrointestinal issues, she was diagnosed with Long Covid.“It’s affected every part of my life,” said the once avid hiker. “And what they’ve done here in a little over a month has been fabulous.”The 'here' in that sentence is Madonna Rehabilitation Hospital’s Post-Covid Clinic. Not only are they researching problems and tracking data, they’re helping hundreds regain their strength – both mentally and physically.“I probably do about five evaluations per week,” said Erin Connelly, an occupational therapist and covid researcher at Madonna. “They tell us week after week that we’re the only ones who understand what they’re going through – that it is real.”Connelly, along with other therapists, work with Magnett on a weekly basis.“We give them hope that – no they’re not crazy – that this is real and a lot of it connects back to Covid and how their body has changed,” Connelly said.From visual and spatial exercises to working on balance and mental health – Magnett said Madonna is teaching her to work within her body’s limits.“You have to change how you deal with life and how you deal with others if you want to affect the change you need,” she said.The University of Nebraska Medical Center is on the leading edge of Long Covid research.“Earlier when we first seeing the virus, was probably in the 10-15-20-percent range,” said chief of infectious diseases Dr. Mark Rupp.Now, there’s improvement. Dr. Rupp said as the virus changes, Long Covid is being seen in less than 5% of new patients.“We don't really understand why we're seeing these shifts,” he said. “It may be a difference in the virus itself as we see variants spinoff. It might also be more reflective of the human population having a greater degree of experience and now immunity from the virus.”He listed the most common symptoms as ones similar to what Magnett is experiencing: shortness of breath, brain fog, chronic fatigue, cardiovascular issues, and a general sense of not feeling fully yourself.He also said it’s reminiscent of what doctors have been seeing for decades – though rarely - after viral illnesses. But it’s not nearly to the scale as what’s happened with Covid."They just aren't as sharp as they used to be,” he said. “Not thinking as clearly as they did prior to getting ill. Unfortunately, there are not great explanations for that at this point."And they all scoff when asked about the legitimacy of Long Covid.Dr. Rupp said people with Long Covid need to be approached with compassion and understanding."These are not folks trying to malinger or get out of their responsibilities,” he said. “Many of them would like nothing more than to be restored to good health. That's the main proof this is not just a figment of our imagination."He also acknowledges that some people with Long Covid may not ever reach 100%.After nearly two-and-a-half years of doubt, Magnett said that doubt is fading. Her goals are simple: hike with her family and get back to reading again.“I feel hope,” she said. “I'll be honest, it's the first time I've felt hope since I had Covid."

The Covid Pandemic is changing.

Right now, there are roughly 7,000 people hospitalized with the virus in the United States – a number that’s never been lower since the pandemic ramped up in the Spring of 2020.

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Despite the numbers, for many, finding stability and balance in life post-Covid is difficult.

“This boundless cup of energy I had before Covid isn’t there anymore,” said Sherri Magnett, a project manager from Omaha.

She still hasn’t fully recovered from a Covid diagnosis in October 2020.

“I was terrified,” she said. “It was at the peak. People were going into the hospital and not coming out.”

Magnett refused to go to the hospital and was aided by a recently retired nurse friend. She missed 10 weeks of work, but 20 months later, full recovery is something she’s still searching for.

“It was unbelievable in how it impacted my job,” she said.

Magnett said the virus destroyed the memory constructs she’d built up her entire life.

She’d get home from a couple of hours of work with a pounding headache and little memory of what happened that day.

“I close my eyes and I see nothing,” she said.

After months of fatigue, brain fog, and battles with heart and gastrointestinal issues, she was diagnosed with Long Covid.

“It’s affected every part of my life,” said the once avid hiker. “And what they’ve done here in a little over a month has been fabulous.”

The 'here' in that sentence is Madonna Rehabilitation Hospital’s Post-Covid Clinic. Not only are they researching problems and tracking data, they’re helping hundreds regain their strength – both mentally and physically.

“I probably do about five [new] evaluations per week,” said Erin Connelly, an occupational therapist and covid researcher at Madonna. “They tell us week after week that we’re the only ones who understand what they’re going through – that it is real.”

Connelly, along with other therapists, work with Magnett on a weekly basis.

“We give them hope that – no they’re not crazy – that this is real and a lot of it connects back to Covid and how their body has changed,” Connelly said.

From visual and spatial exercises to working on balance and mental health – Magnett said Madonna is teaching her to work within her body’s limits.

“You have to change how you deal with life and how you deal with others if you want to affect the change you need,” she said.

The University of Nebraska Medical Center is on the leading edge of Long Covid research.

“Earlier when we first seeing the virus, [Long Covid] was probably in the 10-15-20-percent range,” said chief of infectious diseases Dr. Mark Rupp.

Now, there’s improvement. Dr. Rupp said as the virus changes, Long Covid is being seen in less than 5% of new patients.

“We don't really understand why we're seeing these shifts,” he said. “It may be a difference in the virus itself as we see variants spinoff. It might also be more reflective of the human population having a greater degree of experience and now immunity from the virus.”

He listed the most common symptoms as ones similar to what Magnett is experiencing: shortness of breath, brain fog, chronic fatigue, cardiovascular issues, and a general sense of not feeling fully yourself.

He also said it’s reminiscent of what doctors have been seeing for decades – though rarely - after viral illnesses. But it’s not nearly to the scale as what’s happened with Covid.

"They just aren't as sharp as they used to be,” he said. “Not thinking as clearly as they did prior to getting ill. Unfortunately, there are not great explanations for that at this point."

And they all scoff when asked about the legitimacy of Long Covid.

Dr. Rupp said people with Long Covid need to be approached with compassion and understanding.

"These are not folks trying to malinger or get out of their responsibilities,” he said. “Many of them would like nothing more than to be restored to good health. That's the main proof this is not just a figment of our imagination."

He also acknowledges that some people with Long Covid may not ever reach 100%.

After nearly two-and-a-half years of doubt, Magnett said that doubt is fading. Her goals are simple: hike with her family and get back to reading again.

“I feel hope,” she said. “I'll be honest, it's the first time I've felt hope since I had Covid."