New program at Brigham and Women's Hospital helps NICU babies transition to home
Bringing a newborn baby home from the hospital is an exciting and happy time but can also be filled with worry and fears, especially if the newborn had any complications before bringing them home.
A program at Brigham and Women's Hospital is working to lighten the load for new parents.
At 3 months old, Cali Morant is one healthy and hungry baby. His mom Yanai Dandridge says Cali's journey didn't start that way. He came seven weeks early.
"My blood pressure was really high my blood platelets were extremely low and my liver was failing us and he wasn't getting what he needed. So they recommended that we deliver him as soon as possible," Dandridge said.
Dandridge delivered Cali at 33 weeks at Brigham and Women's Hospital. Cali weighed in at 4 pounds, 8 ounces and had a heart murmur which is common for premature babies. He was immediately taken into the NICU.
"He was in a feeding tube the first few weeks hooked up from his nose when he was first admitted to the NICU he was on a CPAP machine so he had stuff hooked up through his nose and mouth IV's through his arms as well," Dandridge said.
It was a stressful time for Dandridge and her fiance, Darius. For one month, Cali was monitored by doctors and nurses 24/7, and then when he was medically ready he was able to go home through the Transition to Home program.
"The first few nights were a little hard to sleep. I didn't sleep at all. I was like are you ok are you breathing," Dandridge said.
"A lot of people don't realize you think at discharge that the NICU journey is over and that's not the case at all. Really that's when the hard work begins," pediatrician Dr. Mollie Warren said.
Warren is a pediatrician at Brigham and Women's Hospital and the medical director for the Transition to Home program. She says this program helps ease the stress and fears for new families
"Our program is entirely virtually based and the reason why we did that because once a baby goes home from the hospital we want them to be able to stay home and not have to keep coming in to do a lot of doctors visits," Warren said.
Warren says they set up weekly virtual doctors appointments with the family and provide digital flow sheets so parents can enter in daily updates of their newborn and ask any questions they have. The doctors monitor the baby's progress online and answer questions through the program app.
"The parents weigh their baby every day, and put in the weight, how much the baby took by bottle, how many times they breastfed, how many dirty diapers. I'm watching that and just making sure things are going well from that end," Warren said.
The program also provides visits from a nurse. The goal is to provide feeding and developmental support outside the hospital and in the home.
Before Transition to Home was launched, some of these babies would have to stay in the hospital for months, says Dr. Christopher Hartnick, the director of the Pediatric Airway, Voice and Swallowing Center at Mass Eye and Ear.
Since the Brigham and Mass Eye & Ear are both part of the Mass General Brigham system, his team works with the Transition to Home program to help infants leave the NICU -- and still have the support they need.
"To be in the hospital for a couple of months is so very hard, which was the reason to say would the parents like to have the competencies to be considered to go home. I think it's incredibly empowering for those families," Hartnick said.
"Babies, when they get home, they just do better. They have the same caregivers feeding them and they're just in a better environment to learn how to eat and thrive," Warren said.
"Just knowing that a nurse would be able to come to the house and see him and our environment and where he's gonna live was helpful too," Dandridge said.
And since Cali's transition to home, Cali's parents say he is thriving.
"He's doing really great. He is eating like crazy. He's not gaining weight in a bad way, gaining healthy weight which is really good," Dandridge said.
When Cali was born, he was 4 pounds 8 ounces. Now, he weights around 10.5 pounds; he's right on track and doing very well.
The Transition to Home program has helped more than 80 families, following the kids until about preschool age.
And eventually, Warren says they'd like to expand the program to include things like transportation and housing.