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MyNorthwest.com

Drayer: Mariners affected by ALS embrace MLB’s Lou Gehrig Day

Today – Wednesday, June 2 – Lou Gehrig joins Jackie Robinson and Roberto Clemente as the only players to have a single day dedicated to them annually throughout MLB. June 2, 1925 was the day Gehrig took over as the starting first baseman of the New York Yankees, and 16 years later to the day he lost his battle with amyotrophic lateral sclerosis – ALS, also commonly known as Lou Gehrig’s disease. That date will now be Lou Gehrig Day, where baseball remembers his legacy, raises awareness and funds for ALS research, and celebrates those who pursue a cure.
MLB
Picture for Drayer: Mariners affected by ALS embrace MLB’s Lou Gehrig Day
MLB

ALS warrior Frates honored on Gehrig Day

It was the first Lou Gehrig Day in baseball on Wednesday. It was the great Iron Horse of the Yankees who first made the world aware of amyotrophic lateral sclerosis, known to the world now as Lou Gehrig's Disease. Of course Gehrig, on the day he retired from baseball because of a disease for which there is still no cure, gave the most famous speech any athlete has ever given, calling himself “the luckiest man on the face of the earth.”
MLB
Picture for ALS warrior Frates honored on Gehrig Day

What is ALS? MLB celebrates Lou Gehrig Day

On Wednesday, the MLB will celebrate Lou Gehrig Day honoring one of the game’s greatest while also raising awareness for amyotrophic lateral sclerosis (ALS), the fatal disease that claimed his life on this date in 1941 at age 37 and is often referred to by his name. ALS is a...
MLB
Picture for What is ALS? MLB celebrates Lou Gehrig Day
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MLB

Lou Gehrig Day close to Sciambi's heart

CHICAGO -- In Boog Sciambi's mind's eye, he can picture peering out from the broadcast booth and witnessing a packed ballpark featuring a sea of red in the stands. An important step toward seeing that become reality was Major League Baseball establishing June 2 as Lou Gehrig Day. When it comes to helping those impacted by amyotrophic lateral sclerosis (ALS), raising awareness is critical.
CHICAGO, IL
fox9.com

ALS fundraiser held in Waconia on Lou Gehrig Day across baseball

WACONIA, Minn. (FOX 9) - Down the street from the Town Ball Tour and on the same day as Major League Baseball also pushed awareness of ALS, an ALS fundraiser took place in Waconia, Minnesota. Just two miles east of Waconia ballpark a fundraiser with its own baseball ties was...
WACONIA, MN

Chicago Cubs: For Boog Sciambi, Lou Gehrig Day is personal

There weren’t a lot of moves the Chicago Cubs nailed last offseason, but the one they did was the hiring of Jon ‘Boog’ Sciambi as the new play-by-play man at Marquee Network. Not only is he a phenomenal presence in the booth, but he regularly uses his position and influence...
MLB
NIH Director's Blog

Scientists discover a new genetic form of ALS in children

In a study of 11 medical-mystery patients, an international team of researchers led by scientists at the National Institutes of Health and the Uniformed Services University (USU) discovered a new and unique form of amyotrophic lateral sclerosis (ALS). Unlike most cases of ALS, the disease began attacking these patients during childhood, worsened more slowly than usual, and was linked to a gene, called SPTLC1, that is part of the body’s fat production system. Preliminary results suggested that genetically silencing SPTLC1 activity would be an effective strategy for combating this type of ALS.
SCIENCE
alsnewstoday.com

Experimental Treatments for ALS

There are a number of experimental treatments in the pipeline for the potential treatment of ALS. These range from those aimed at treating the symptoms of the disease to those that may be able to target the underlying cause of the disease. Eventually, all of this research may even lead to a cure for ALS. Some of the experimental therapies currently under development for the disease are summarized below.

Scientists Discover Rare Form of ALS That Can Strike Kids

WEDNESDAY, June 2, 2021 (HealthDay News) -- A new form of amyotrophic lateral sclerosis (ALS) that affects children has been discovered by an international team of researchers. They used advanced genetic techniques to identify 11 such cases in children who had mysterious neurological disorders. Most cases of ALS -- also...
alsnewstoday.com

Newly Diagnosed: Treatment Strategies for ALS

While there is no cure for amyotrophic lateral sclerosis (ALS) yet, there are therapeutic approaches that can help to ease symptoms and improve quality of life. Experimental treatments are also being explored that could prove beneficial for patients. Check out the information below to explore more about therapeutic strategies your doctor may recommend and what therapies are in the pipeline for potential future use.
EurekAlert

ALS development could be triggered by loss of network connections in the spinal cord

University of Copenhagen - The Faculty of Health and Medical Sciences. ALS is a very severe neurodegenerative disease in which nerve cells in the spinal cord controlling muscles and movement slowly die. There is no effective treatment and the average life expectancy after being diagnosed with ALS is usually short. Because of this, new knowledge about the disease is urgently needed.
alsnewstoday.com

Flash Briefings for ALS

Here you will find our collection of flash briefings for ALS News Today. Listen to the latest recordings below and follow us on SoundCloud for more. ALS Society's Project Hope Aims to Draw ALS Trials to British Columbia. ALS News Today’s forums moderator, Amanda Sifford, discusses how British Columbia and...
scitechdaily.com

Study of 11 Medical-Mystery Patients Results in Discovery of New Genetic Form of ALS in Children

NIH- and USU- led study links ALS to a fat manufacturing gene and maps out a genetic therapy. In a study of 11 medical-mystery patients, an international team of researchers led by scientists at the National Institutes of Health and the Uniformed Services University (USU) discovered a new and unique form of amyotrophic lateral sclerosis (ALS). Unlike most cases of ALS, the disease began attacking these patients during childhood, worsened more slowly than usual, and was linked to a gene, called SPTLC1, that is part of the body’s fat production system. Preliminary results suggested that genetically silencing SPTLC1 activity would be an effective strategy for combating this type of ALS.
Law.com

Locke Lord Associate Leads by Example Despite ALS Diagnosis

It’s been nearly a year since she was diagnosed with ALS, but Locke Lord associate Alexandra Cavaliere recently sent a note to everyone at the Am Law 100 firm to raise awareness about the terminal disease, and to share her experience of practicing with ALS. Cavaliere’s note was timely since...
MLB
News-Medical.net

Researchers gain new insights about ALS development

ALS is a very severe neurodegenerative disease in which nerve cells in the spinal cord controlling muscles and movement slowly die. There is no effective treatment and the average life expectancy after being diagnosed with ALS is usually short. Because of this, new knowledge about the disease is urgently needed.
wmcactionnews5.com

Best Life: ALS patient fighting for access to treatment and more time

SUMMIT, N.J. (Ivanhoe Newswire) – Last summer, Lisa Stockman Mauriello was a busy PR executive, starting her day with 5 a.m. boot camps, workouts and keeping up with her three sons. Today, she is fighting for her life as an aggressive and rare form of ALS, also known as Lou Gehrig’s disease, ravages her system.
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